{"id":2275,"date":"2019-10-18T10:18:01","date_gmt":"2019-10-18T10:18:01","guid":{"rendered":"http:\/\/www.mymedicplus.com\/news\/?p=2275"},"modified":"2021-03-31T00:54:54","modified_gmt":"2021-03-30T19:24:54","slug":"findings-of-bbc-study-spark-call-for-action-for-better-endometriosis-care-in-uk","status":"publish","type":"post","link":"https:\/\/www.mymedicplus.com\/blog\/findings-of-bbc-study-spark-call-for-action-for-better-endometriosis-care-in-uk\/","title":{"rendered":"Findings of BBC Study Spark Call for Action for Better Endometriosis Care in UK"},"content":{"rendered":"\n

Source: endometriosisnews.com<\/p>\n

Following findings from a\u00a0British Broadcasting Corporation\u00a0(BBC) study outlining the wide-ranging toll of\u00a0endometriosis, supporters \u2014 including\u00a0Endometriosis UK\u00a0\u2014 are calling for stakeholders from government, healthcare, and business to step up efforts to improve the lives of the 1.5 million women in the U.K. who have the chronic and debilitating disease.<\/p>\n

Nearly all of the study\u2019s 13,500 participants said\u00a0endometriosis\u00a0has badly affected their career, sex life, and mental health. In addition, most said the disease has adversely impacted their education, and that they rely on prescription painkillers, including opioids, for ongoing treatment. About half of the women respondents said they have experienced suicidal thoughts.<\/p>\n

\u201cThis shocking new research is a stark reminder that both society and the\u00a0NHS<\/a>\u00a0(National Health Service) need to wake up and accept that endometriosis is a chronic condition that cannot be brushed under the carpet,\u201d Emma Cox, Endometriosis UK CEO, said in a\u00a0press release. \u201cThe impact it can have on all aspects of a person\u2019s life \u2014 both physically and mentally \u2014 must be recognized.\u201d<\/p>\n

The study, a survey said to be the largest of its kind, questioned women in the U.K. about how endometriosis has affected them. Endometriosis UK assisted the BBC in collecting survey answers.<\/p>\n

Cox called for efforts to reduce the time to\u00a0diagnosis\u00a0\u2014 currently 7.5 years on average \u2014 for women with the disorder. Pelvic\u00a0pain\u00a0associated with endometriosis is typically indistinguishable from other causes, including menstruation,\u00a0urinary tract infections,\u00a0pelvic inflammatory disease, and\u00a0irritable bowel syndrome. That makes rendering a diagnosis difficult.<\/p>\n

\u201cWithout investment in research, a reduction in diagnosis time and better access to\u00a0pain\u00a0management, women will continue to face huge barriers in accessing the right\u00a0treatment\u00a0at the right time,\u201d she said.<\/p>\n

Saying that endometriosis costs the UK \u00a38.2 billion (about $9.1 billion) annually, Endometriosis UK is urging the government to fully implement the\u00a0National Institute for Health and Care Excellence (NICE) guidelines. Those guidelines, set forth in 2017 in \u201cEndometriosis: Diagnosis and Management,\u201d established minimum care to which patients should have access.<\/p>\n

For her part,\u00a0Caroline Dinenage, Minister of State at the Department of Health and Social Care, said that while endometriosis awareness is increasing, more work is needed.<\/p>\n

\u201cToo often across society, women\u2019s bodies are seen as an inconvenience, with their\u00a0symptoms\u00a0and health concerns not taken seriously enough,\u201d she said.<\/p>\n

By adhering to the NICE guidelines, clinicians can help erode stigmas around the disease, Dinenage said. She also called for employers to create supportive and flexible ways to help those living with the disorder.<\/p>\n

As a result of the study, Members of Parliament are expected to launch their own inquiry into the disease\u2019s effects.<\/p>\n

Other advocacy groups also are calling for change.<\/p>\n

\u201cHealth services need to wake up to the hidden and unspoken emotional pain too many women experience without the help they need to manage such a poorly understood and distressing condition,\u201d said Sarah Hughes, CEO of the UK\u2019s\u00a0Centre for Mental Health.<\/p>\n

Study participant\u00a0Bethany Willis, 19, of the county of Essex in southeast England, said in an\u00a0article\u00a0on the BBC\u2019s website that she started experiencing\u00a0symptoms\u00a0at age 9. However, despite having a mother and grandmother with the same disorder, she was not diagnosed with endometriosis until this summer.<\/p>\n

\u201cThe pain is like barbed wire wrapped around your insides and someone\u2019s pulling it away while at the same time an animal is trying to eat its way through you,\u201d she said.<\/p>\n

Willis said the pain was so severe that it caused her to take an overdose of medication.\u00a0While recent surgery has helped her cope with the condition, she laments having dropped out of veterinary school and giving up her \u201cdream career.\u201d<\/p>\n

According to the\u00a0Endometriosis Foundation of America, roughly 200 million women globally are affected by the disease, which occurs when bits of uterus tissue lining grow on other pelvic organs.<\/p>\n\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":2276,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[697,2095,391,389,427,161],"class_list":["post-2275","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-awareness","tag-bbc","tag-diagnosis","tag-endometriosis","tag-symptoms","tag-uk"],"yoast_head":"\nFindings of BBC Study Spark Call for Action for Better Endometriosis Care in UK - MyMedicPlus<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.mymedicplus.com\/blog\/findings-of-bbc-study-spark-call-for-action-for-better-endometriosis-care-in-uk\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Findings of BBC Study Spark Call for Action for Better Endometriosis Care in UK - 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